THE KIDNEY BEANZ TRUST
Children with life-threatening kidney disease often experience great difficulty in living normal lives due to the tremendous impact that their illness has on them and their families. The Kidney Beanz Trust was established to provide comprehensive support services to these children and their families.
“It is vital that children are dialysed in a dedicated child friendly hospital environment,” says Kidney Beanz founder and specialist paediatric nephrologist, Prof Errol Gottlich. The Trust supports patients with severe and life threatening kidney disease who attend the Morningside Children’s Kidney Treatment Centre. The Trust and the Centre are situated at Medi-Clinic Morningside in Sandton, South Africa. Special focus is on children undergoing acute and chronic dialysis and subsequent transplantation by providing a range of therapies and practical support. This support comes to the children in the forms of various therapies including physiotherapy, occupational therapy, psychological support, dietetics and educational guidance.
In March 2015, the Kidney Beanz Trust opened it’s second support structure at the Charlotte Maxeke Academic Hospital in Gauteng, something we have dreamed about since starting the Trust over 8 years ago. We have moved in slowly by providing transport costs to those in need, employing one nurse and a social worker.
The dialysis unit is managed by Fresenius Medical Care South Africa and provides both haemodialysis and peritoneal dialysis services for those patients who develop kidney failure and has its rooms adjacent to those of the trust. Children receive specific therapies during and after chronic dialysis sessions. Since the inception of the trust in 2007, 79 children have been successfully transplanted and many more have been beneficiaries of the trust. Of the 79, one child has had a combined kidney and pancreas transplant and 10 children have had combined kidney and liver transplants.
The Trust recognises the strain that severe kidney disease has on families and provides both psychological support and financial advice. The Trust also provides the children and their families with the skills needed to cope with the heavy demands of chronic dialysis & general preparation for transplantation and post transplantation information is also provided.
The Trust ensures that the children who have had transplants receive encouragement and support as they participate in the National and World Transplant Games.